Research Registry

The Indiana University Marfan Syndrome Research Registry

This registry is currently under development. Our goals for the registry include the following:

  • Provide a means for researchers to connect with individuals with Marfan syndrome who wish to participate in research
  • Maintain a confidential database of clinical and laboratory data for use in research studies

975 West Walnut Street | Medical Research and Library Building, IB 130 | Indianapolis, IN 46202 | (317) 944-3966